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Technology

How One Woman With a Very Rare Disease Secured a Clinical Trial

The New York Times

TechnologyThe New York Times·Aug 17, 2026·1 min read

How One Woman With a Very Rare Disease Secured a Clinical Trial

Through sheer determination, Neena Nizar has become the first patient in a clinical trial testing a treatment for her disease — one so rare it affects just 30 people worldwide.

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